Meniere’s

Okay,  I know, I’m a book reviewer.  That’s what my blog is all about.  But I warned you, occasionally I will digress.  There is actually more to me than books.  Much more, well maybe not MUCH more.   But, every now and then I have to rant.  Today is that day.

I have Meniere’s Disease.  It will not kill me.  Some days,  I question that.

Meniere’s is a disease of the inner ear, causing dizziness, vertigo, tinnitus, ear fullness, and deafness.  You can have it in one ear or both ears.  You can have the symptoms daily or every 6 months.  You never know when it is going to hit.  You can do everything right, and still be on the floor hugging the toilet.  Drop attacks are not unheard of.

I know that if I have too much salt, within 15 minutes my ears are plugged  — it’s a little like going up or down a steep hill in a car, only not being able to “pop” your ears back open.  Stress, of course, is forbidden.  I can no longer ride in a car for more than about half an hour.  Traffic going by throws me off, and the buffeting of the car makes me dizzy.  East winds blow my whole world off kilter.  Low barometric pressures bring on dizziness.  High barometric pressures bring on headaches.  For some unknown reason, I am worse in high humidity.  Sunlight moving through the trees is dangerous.  Busy carpets should be abolished.  Uneven ground was not meant to be walked upon.  Fluorescent lights are a nightmare.  Shopping without a cart is dangerous to me and my surroundings.  Big box stores have the worst lighting imaginable.    Restaurants are too busy, and their lighting sucks.  Movies theaters do not entertain me.  Music has become an annoyance, the base goes through me til I want to scream.  Too many people, too much noise….just lead me to my bed now.

I miss a lot of events.   No, it is not because I am lazy or because I don’t like you.

But it could be sooooo much worse.  Thankfully, my triggers do not include chocolate or coffee.   I’ve become great at predicting weather changes two days before it happens!  Yes, I’m dizzy at some point every day, but true vertigo occurs only every few of months.  Yes, my tinnitus and ear fullness hits almost every day, but I’m not deaf yet.   I am lucky.  There are so many people who have this terrible disease much worse than I do, and there are so many people with diseases much worse than mine.

There are so many things I enjoy.  Reading.  Sitting out by the pool.  Reading.  Playing with our rescue pups. Reading.  Watching television, playing games, etc. with my husband.  Reading.  Writing book reviews.  Did I mention reading?  Meniere’s does NOT affect all aspects of my life.  It can’t.

These are the things I try to remember when I’m having my pity party….like today.

 

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5 thoughts on “Meniere’s

  1. TheQuirkyBookNerd says:

    This is such an informative post! I knew of Meniere’s before, but I had never heard a personal account of experiencing it. And you really sound like you have a great attitude about everything! Thank you so much for sharing this!

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  2. Wendy says:

    I liked reading this in your words. You know it affects me every day, but I don’t often hear another’s description. I am deaf, it’s not the end of the world, I promise. I have cochlear implants, so yes I can “hear” but it’s different and can be challenging. However, I am very grateful I have this option! A lot of the things that used to make me so very sick don’t any more. or not nearly as much. I don’t trip over my feet as much as I used to…or some imaginary thing that jumps out at me. I don’t have drop attacks …I started to say “any more” but as soon as I do, I’ll have one. My symptoms have been much better for a year now. That’s not to say they are gone, but I don’t question whether this illness will kill me anymore. I can enjoy more of life again. (I know that you know I’m not well and I have many more challenges, but I’m happy and I think I’m doing pretty darn good)
    There’s one part of your post that made me think….oh, honey, don’t compare yourself to others. We can’t compare our ills to others. What you go through may seem insurmountable to others, yet you are thriving. We all have our challenges.

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    • KatD59 says:

      First, I am glad you are “enjoying more of life again”. I love that statement! Almost as much as your statement “but I’m happy….” You are right, we all have our challenges, and some days are better than others. Most days I am just thankful to be where I am……and even on the days I am struggling I can usually find something to be thankful for.

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